Celebrate National Ice Cream Day and Help Mackenzie – Talk About a WIN-WIN

July 12, 2018

Written By

Mary Friona Celani

Talk about a win-win! Celebrate National Ice Cream Day with The Pink Cow and help a little girl. Our friends at The Pink Cow say they want to celebrate the most wonderful day of the year by giving back to the community they love.

So, mark your calendar – on July 15th from noon to 10:30 p.m., 25% of proceeds of all custard cones will go to Miracle For Mackenzie!

Mackenzie’s Story: In November of 2017, after 2 years of wrong or unknown diagnoses, Mackenzie was diagnosed with Parry Romberg Syndrome. Mackenzie is a vibrant, happy, middle child of a large blended family. PRS is an extremely rare, progressive, “incurable” autoimmune disease that causes “hemi-facial” atrophy; meaning it causes half the face to “waste” away. In early spring of 2018, Mackenzie’s mother, Cathie, was introduced to Dr. Siebert; the only physician, who does a surgery called Micro Vascular Free Tissue Transfer. Dr. Siebert will take healthy tissue from another part of Mackenzie’s body to replace the diseased tissue in her face. With gene sequencing, the tissue changes back to normal following surgery. Facial growth and soft tissue will become normalized. This gives us hope. This is the only option to save Mackenzie’s face. This is Mackenzie’s Miracle. Mackenzie’s first surgery is scheduled for July, 23, 2018 in Wisconsin.

From 6 to 10 p.m. they’ll have a bounce house, entertainment, games and prizes!

 

About Me

Welcome to Totally Buffalo! My name is Mary Friona-Celani and I am the creator of this site! After spending 20 years in the Buffalo media, I moved on to focus on my beautiful family. Now, the time has come for a new project. I was ready for something new. Something mine.
I am born and raised in WNY and my pride runs deep. My husband, Scott and I are very happy to be raising our four daughters here.

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  1. Benefit to Help Young Alden Girl Battling Extremely Rare Condition » Totally Buffalo - […] Celebrate National Ice Cream Day and Help Mackenzie – Talk About a WIN-WIN […]

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