Lindsay’s Legacy – Remembering their amazing daughter by helping others.

November 2, 2019

Written By

Mary Friona Celani
 Lindsay MacIver was one of those folks who just loved life. She loved her family, sports and preforming in school plays.
Just after high school graduation, a lump was discovered in her upper chest area. He mother, Bonnie MacIver-Mariani brought her to the doctor, where a biopsy (among other things) was done. The results, says Bonnie – were not expected, “My healthy, beautiful, vibrant daughter, Lindsay, had cancer. He didn’t know what kind at that point, but said it was serious. What was the name of this monster that had waged war with my daughter, and what can we do to fight it?  I started calling Roswell Park Cancer Institute on a daily basis. I knew they had the tools we needed to start the fight NOW.”
Treatment couldn’t start right away – because they said the doctors couldn’t treat something if they didn’t know exactly what it was. Two weeks later, the results came back as Alveolar Rhabdomyosarcoma; an extremely rare childhood cancer.  Treatment started,
“During the next 2 ½ years, Lindsay was poked, prodded, and pinched more times than I can count.  With each MRI, CT, X-Ray, or blood work that she had, our hopes were either lifted up, or shot down in a matter of minutes.  Lindsay (and all  of us) maintained a positive attitude throughout.  She endured seven different chemotherapies, had multiple surgeries, one of which removed six ribs, part of her lung, part of her sternum.  She had side effects ranging from a slight rash to peripheral neuropathy, affecting her ability to walk …. but, what you saw on the outside paled in comparison to what she was on the inside – strong, determined, courageous!!”

Lindsay never gave up fighting.







“Sadly, in spite of all the above, I was with my daughter when she took her last breath on July 21, 2004 at the young age of 21.  One year after she left us, having pent up frustration over both her being gone, and knowledge of the fact that so little research was done on childhood cancer, I knew I had to do SOMETHING !!!  Hence, the Lindsay’s Legacy 5K Run.  I, along with my family and friends, all work very hard every year (this will be our 13th) to raise money towards finding a cure.  The funds we’ve raised thus far (over $175,000.00) go to the Courage for Carly Fund (formerly Carly’s Club) – the pediatric fundraising division of Roswell Park Cancer Institute.”
It is an amazing legacy. For Bonnie it means everything. Everything.
“I do it FOR her, I do it as a Mother so that she is not forgotten – people know SHE WAS HERE, and I do it for the over 13,500 children that are diagnosed with cancer every year – childhood cancer research needs more than 4% of the National Cancer Institute’s budget”
Because Bonnie, her family, friends, and the community will not give up – not ever,
“I say to you, cancer, do not think yourself victorious – this game is NOT over.  I have people.  I have people that care, that understand, that want to challenge the statistics and make a difference!!”

$20 pre-reg – no premium
$25 pre-reg – premium

$25 day of – no premium
$30 day of – premium

Packet Pickup and In Person Registration
Race Day, Saturday, November 9, 2019, 8:00am @ Eldredge Bicycle Club

Eldredge Bicycle Club
17 Broad St.

More details at


About Me

Welcome to Totally Buffalo! My name is Mary Friona-Celani and I am the creator of this site! After spending 20 years in the Buffalo media, I moved on to focus on my beautiful family. Now, the time has come for a new project. I was ready for something new. Something mine.
I am born and raised in WNY and my pride runs deep. My husband, Scott and I are very happy to be raising our four daughters here.





1 Comment

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    Your story is very sad just like most cancer patients.I am so glad to see you are doing something to keep her name alive. It is horrible that you have to suffer so much.My father had colon cancer and lived for ten years with it.I have two daughters Denise and Jennifer they both had cancer.One had throid cancer and the other colon,rectal cancer.They both went thru alot.Jennifer is still going through alot she had 7 surgery and is still having chemo every other week.I pray every day they would be in remission and a cure would be found out to beat this horrible beast.I am so sorry for your loss.She was a very beautiful girl.Noone knows what it is like unless you go thru it all.

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