Hope for Jonah. Send this sweet boy a birthday card and your prayers.

September 4, 2017

Written By

Mary Friona Celani

It is Pediatric Cancer Awareness Month.

I’d like you to be aware of sweet little Jonah. We first introduced you to Jonah a few months ago. (read original story here)

Jonah is a 3-year-old boy from North Collins who is battling stage 4 high risk neuroblastoma. He has been fighting since his diagnosis in December of 2014; since he was just 15 months old.

For three years this sweet little boy has been in and out of the hospital – back and forth to New York City where he is receiving treatment. It is heartbreaking to think that this poor little boy has basically been suffering for years because of this monster that is cancer. For his parents, Jenn and Adam DeLang, it is a nightmare that is excruciating to everyone involved.

Jonah is once again receiving treatment in New York. He has been having a very difficult few days and the frustration, as you can imagine, is boiling over,  “I’m beyond frustrated at this point. I can’t understand how these treatments can be administered in good conscious when there is no way to effectively manage the outrageous side effects they cause and why the hell the inpatient floor team is not equipped to handle these kids after treatment,” said Jenn, “It is unlikely we get out of here until late this coming week.  Jonah will likely spend his birthday here in the hospital. I’m so heartbroken for him. He’s terribly depressed and so consumed with anxiety. Nothing I try pulls him out of the depression.”

What children like Jonah go through is gut-wrenching and completely unfair. And as they continue to wait for answers – as to just what is going on to make Jonah so sick right now – that 3-year-old boy is beginning to lose hope. He’s sad, anxious, and depressed.

Please pray from him and his family.

I am hoping to help raise awareness about some of the facts including this. The National Cancer Institute – which controls billions of dollars  and releases a fraction of its resources to specifically help children with cancer is taxpayer-funded – which means that our voice counts. This is why you have to call or write to your elected leaders and tell them to give these children more than four.

Children like Jonah.

Who will be turning four soon. Jonah will likely be in the hospital or at the Ronald McDonald House in New York so please, if you have a few moments, send him a card.

Birthday cards can be sent to this address while the family is in NYC for treatment:

Jonah DeLang
C/O Barbara Zobian
345 East 73rd st
apt. 2L
New York, NY 10021

There is an Amazon Wish List  page set up for Jonah if you would like to send him a gift.

There is a gofundme page set up for this amazing family going through an extremely difficult time. Please help if you can.

 

 

About Me

Welcome to Totally Buffalo! My name is Mary Friona-Celani and I am the creator of this site! After spending 20 years in the Buffalo media, I moved on to focus on my beautiful family. Now, the time has come for a new project. I was ready for something new. Something mine.
I am born and raised in WNY and my pride runs deep. My husband, Scott and I are very happy to be raising our four daughters here.

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2 Comments

  1. Avatar

    Thank you, Mary Friona and Totally Buffalo!
    Sally, Jonah’s grandma

  2. Avatar

    Thank you Mary I will be sending him a card. What wonderful thoughtful things you do for people!!

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