Heartbreaking Update on 6-month-old baby Johnny

April 5, 2018

Written By

Mary Friona Celani

UPDATE: We are saddened and heartbroken to share the news that 6-month-old Johnny Peirog  has passed away.  We send thoughts and prayers to his parents, Tiffany and Sean and all of the people who loved him.

 

Baby Johnny was born on October 23, 2017 and has already undergone several surgeries at Oishei Children’s Hospital. He has a hole in his heart, a cleft lip and palate and Lissencephaly, which is a rare, gene-linked brain malformation characterized by the absence of normal convolutions (folds) in the cerebral cortex and an abnormally small head.

His parents, Tiffany and Sean have two other babies at home as they care for their little boy in the Pediatric Intensive Care Unit at the hospital.

If you’ve never had a child or family member who’s had a long-term stay in the hospital, it is draining in many ways. Physically, emotionally, and financially.

 

Tiffany’s friend, Suzanne says it’s been tough, “I have known Tiffany and her family for many many years, they are such a close loving family and I know Tiffany is getting all the emotional support she needs! Too bad emotional support won’t help pay some of this outstanding debt. I am starting this go fund me in Tiffany’s name to hopefully take some of the pressure from these unpaid bills off her mind!  I can’t imagine the stress she feels worrying for this tiny little guy fighting for his life.”

Here is a link to the Facebook fundraiser. https://www.facebook.com/donate/600638380272236/?fundraiser_source=messages

If you would like to help the family, here is a link to their YouCare Fundraising Page.

 

 

About Me

 

 

Welcome to Totally Buffalo! A local lifestyle website.

My name is Mary Friona-Celani and I am the creator of this site! I’m a wife, a mom, a grandma, a Buffalo booster, an entrepreneur and a small business owner. I’m so glad you stopped by.  After 20 years in the buffalo media, I went out on my own to tell stories about the people, places, events and all-around fabulousness of this wonderful place we call home. Buffalo is different and so is this site. We are here to share stories, encourage kindness, and help make this a better place to live.

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